Join RareShare Co-Founder, David Isserman, Live on the Washington Post Website

February 9th, 2009

David Isserman, one of the founders of RareShare will be co-hosting a live online discussion about RareShare on the Washington Post website tomorrow, February 10th, at 12PM Eastern.  Click here to access the dedicated discussion page on WashingtonPost.com.

New RareShare Group on Facebook

January 3rd, 2009

To help spread the word about RareShare, we created a RareShare group on Facebook. Feel free to join and invite others to join by visiting: http://www.facebook.com/business/dashboard/#/group.php?gid=42672857178

RareShare Got Crunched

December 24th, 2008

RareShare had a nice write-up on TechCrunch today. Click here to check it out.

RareShare Wins Pace University’s 5th Annual Pace Pitch Contest

December 10th, 2008

We are really excited to let everyone know that we recently competed in and won Pace University’s 5th Annual Pace Pitch Contest in the category of social ventures. The contest was held in New York last week and included participants from several outstanding social enterprises. We plan to contribute the prize money towards improving and expanding RareShare. You can check out the Pace University Pitch Contest website at http://www.pace.edu/page.cfm?doc_id=14204.

The Community Partnership Program

September 26th, 2008

We’re very excited to announce a new initiative at RareShare called the Community Partnership Program. It offers health advocacy and patient support organizations a way to build awareness through RareShare. This is completely free to organizations selected to participate in the Program. For more information about the Progam and how to apply, please download and review the PDF below.

Making the Most of Rareshare Communities through Discussion Forum Posts

July 25th, 2008

One of the main features of every RareShare community is its discussion forum. We set these up as a way for members to post questions and answers about their disorder and to share useful information with other community members.

One thing we’ve noticed since entering beta late last month is that RareShare communities which have forum posts tend to attract more participation from other RareShare members. This is why we continue to suggest that every member try to post at least once to his or her community.

Here are just a few of the things you can do on the RareShare community forums:

  • Create new threads or reply to previous threads
  • Subscribe to threads and be notified when a new post is made
  • Use “Textile”  to format text and links on posts

Additionally, when a member posts to his or her community forum, that community is then added to the “Recently Updated Communities” section. This builds visibility for that community.

As always, feel free to email us at suggestion [at] rareshare.org if you have any feedback or suggestions for the Site.

New Features Now on RareShare

July 12th, 2008

Thanks to everyone for sending in suggestions for the Site. We’re taking these suggestions seriously and over past couple of weeks, we’ve implemented several of them. These include:

Improved Design
We improved the design to make it easier for members to use and navigate the Site

Automatic Notifications
Members can now opt-in through their profiles to be alerted when their communities are updated

Refer a Friend
Communities now feature an invitation box that allow members to easily invite others to join their community

Improved Search
The “Community Search” now scans all communities by name and synonyms

Expert Q&A
Each community now includes an expert question and answer section. Once an expert is added to a community, community members can ask questions about their particular disorder

Suggest a Community
Users can now suggest communities to be added to the RareShare network through a simple form.

We’re constantly working to improve RareShare for our members, so keep those suggestions flowing. You can email them directly to suggestions@rareshare.org.

ReadWriteWeb Reviews RareShare

July 7th, 2008

The international technology blog, ReadWriteWeb, has reviewed RareShare! Click here to read the post by Frederic Lardinois.

RareShare in the Toronto Star

July 3rd, 2008

We had a great article published in today’s Toronto Star. Click here to check it out.

Preparing for Our Early Beta Launch

May 1st, 2008

Thank you for being so patient as we prepare for the early beta launch of RareShare. I’m excited to let you know that everything has been progressing on schedule and we’re getting very close to our launch.

A special thank you to all of you who have signed up for the “Request an Invite”. As we continue to setup communities within RareShare, yours will be at the top of the priority list. For those who haven’t yet signed up, feel free to do so and we’ll make sure your communities are added to the priority list as well.